This post is an installment of our profile series featuring participants, loved ones, advocates, and team members of the MBCproject. Thank you to all who have shared their voice and stories.
Today's profile features Carol Miele.
I want to feel I'm doing something to help support efforts to improve MBC treatment as well as to find out why some do better than others and live longer. I believe the research staff at MBC Project will do their best to find a way to prevent breast cancer and/or cure this age old illness by keeping the patients at the center of its core values. I trust this organization and I’m proud to be a part of it.
Q2. Please tell us what being a part of the MBCproject means to you.
It's a way of giving back, of supporting the cause. It allows me to feel useful in dealing with an illness that takes away so much control in your life. I hope to witness an exciting breakthrough in technology within this challenging world of MBC research.
Q3. If you'd like to share, please tell us how it felt when you were diagnosed with metastatic breast cancer.
Total shock!! I had 25 years of negative mammograms, then found a hard itchy mass while showering. I didn't know I had dense breast tissue or that mammography couldn't visualize the (Lobular) tumor growing in my dense breast tissue environment. By the time I found it, it had leapt to the other breast (Ductal) & spread throughout my skeletal system, settling in 8 locations..At the time, I felt I had been let down by the medical community I had relied on to protect my health. I totally fell between the cracks!
Q4. In a few words, can you please share with us your hopes for the future of metastatic breast cancer?
More funding for researching MBC, the only BC that kills. Better technology for discovery of BC at any stage, education of the gatekeepers, the primary physicians. A cure for all breast cancers, early stage & advanced. Not too big an ask is it? :)
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